Sickle Cell Passport
Holistic support for young people and families
The prototype Digital Health Passport for Sickle Cell, developed in collaboration with the Sickle Cell Society, includes the following planned features:
Key Features
Everything you need to manage your health information effectively.
Peer Mentoring Support
Digital tools designed to facilitate and enhance peer mentoring programmes.
Emergency Care Plans
Instant access to digital plans to assist during a sickle cell crisis.
Symptom Monitoring
Features to track pain and other clinical markers for better management.
Transition Resources
Specific support for young people moving from paediatric to adult services.
Health Education
Tailored resources to help users understand and manage their condition.
Clinical Communication
Integrated systems to improve data sharing between patients and NHS teams.
Well-being Screening
Tools to monitor and support the mental health of young people.
Why Choose Sickle Cell Passport?
- Faster, more effective treatment in A&E
- Clear communication of individual needs
- Reduced stress during crisis situations
- Better continuity between different hospitals
- Empowers young people to advocate for their care
- Comprehensive health record always available
“We are pleased to express our satisfaction on this collaboration... the quality of life for all individuals with this condition within our community is poised to improve significantly.”
How It Works
Create Your Passport
Work with your haematology team to set up your child's Sickle Cell Passport.
Add Critical Information
Include crisis protocols, pain management plans, and regular treatments.
Keep It Updated
Update after clinic visits, transfusions, or any changes to treatment.
Present in Emergencies
Show your passport to A&E staff to ensure they have the information needed for fast, effective care.
Learn More About Our Plans
Download our brochure to learn more about the Sickle Cell Passport and how it will support young people and families.
Download Brochure (PDF)Join the Development
We're looking for NHS commissioners and clinical teams to help shape the Sickle Cell Passport. Contact us to get involved.