Supporting children

and young people

with Long Covid.

Find out how the Digital Health Passport

can help the NHS to support

those effected by Long Covid.

Long Covid is the patient-led term to describe the ongoing, fluctuating symptoms of COVID-19.


What problem is it tackling?

High Prevalence

An estimated 1.3 million people living in the UK were experiencing self-reported long COVID (symptoms persisting for more than four weeks) as of 6 December 2021.


The Office of National Statistics

https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/conditionsanddiseases/bulletins/prevalenceofongoingsymptomsfollowingcoronaviruscovid19infectionintheuk/6january2022

Definitions

Most infections with COVID resolve within the first 4 weeks. “Long COVID” is an informal term that is commonly used to describe signs and symptoms that continue or develop after an acute infection of COVID. Depending on how long you have ongoing symptoms for, it can be called one of 2 things:

Ongoing symptomatic COVID

This is where your symptoms continue for more than 4 weeks. If your symptoms last for longer than 12 weeks, it will then be called;

Post-COVID Syndrome

This is where your ongoing symptoms continue for longer than 12 weeks and cannot be explained by any other condition.”

https://www.yourcovidrecovery.nhs.uk/what-is-covid-19/long-covid/


What we will provide

Symptom Tracking

People that track symptoms and quality of life measures (patient reported outcome measures) can communicate better with health professionals and improve decision making and treatment.

Common symptoms in children include:

  • Extreme tiredness
  • Brain fog
  • Headaches
  • Dizziness
  • Rashes
  • Chest pain
  • Stomach upset/pain
  • Mood changes
  • Sore throat
  • Joint pain or swelling
  • Sickness/nausea

Health Hacks

The "Health Hacks" section is envisaged to provide a comprehensive collection of resources from the NHS "yourcovidrecovery.nhs.uk" website.

A general section will include this information:

General

  • What is Long Covid?
  • How can I tell if I have Long Covid?
  • Where can I find out more?

The other areas are listed below:


My Care

  • How will my symptoms be assessed?
  • What tests will I have?
  • How will my care be planned?
  • What can help?
  • How will I be followed up?
  • Who will be involved in my care?

Self Care - Body

  • Breathlessness 
  • Fatigue
  • Cough
  • Managing Your Oxygen
  • Taste and Smell
  • Voice and Swallowing
  • Musculoskeletal, Shoulder and Back Pain
  • Chest Pain
  • Palpitations
  • Skin Disorders
  • Headache
  • Dizziness


Self Care - Mind

  • Managing Fear and Anxiety
  • Managing Your Mood and Coping with Frustration
  • Memory and Concentration

Your Wellbeing

  • Eating Well
  • Sleeping Well
  • Getting moving again
  • Family, Friends and Carers
  • Grief and Bereavement

Your Road To Recovery

  • Coming Home From Hospital
  • Managing Daily Activities
  • Returning To Work
  • When Do I Need To Seek Help?
  • What Next?